Thursday, March 25, 2010

How we got off meds and with what ....as we know.

This all started when my daughter (Emily) was 8 she's 14 now.. 8/1/11..

It was a hot july (2005) and Emily was swimming everyday and I thought she was sun burned but it would'nt go away. Soon after I seen that this burn would'nt go away she began to get run down, slow and I thought she was messing with me but she cryed and said she hurt and was having troubles walking, I didn't know what to think and it seemed to get worse so I took her to local Dr's and a dermatoligist they could'nt figure it out they even said that the rash and loss of energy or movement was'nt related.

So a couple few months had gone by and my sister looked on the computer and put in her symptoms and came up with JDMS and was excited she thought she figured it out. So we found that davis, Stanford or SF medical center had DR's that knew of such a disease so we finally got to go see a Dr in SF and we told them what we thought it was JDM and they said yep thats what it was so the Dr's Imediately got Emily on a IV & within a few days she was bouncing in and out of the hospital bed and those beds are tall. Before we got there I had to help her with getting in & out of her bed or the car or the bath tub & She was having troubles just walking or even swallowing food before.

The Dr's put her on the usual meds like prednisone, methotrexate, embril, folic acid, plaquinel (not sure how some of those are spelled) so after 3 years of taking these nasty meds she was down to 2 mil of prednisone (she started on 50 mil) and we were told she would only be taking it for 2 years but after 3 years she still had inflammation in her muscles and still was taking the nasty meds.

Okay so 3 years went by and a friend of ours was saying she had this contractor coming in to her work giving her these shots of some juice and she said after a few days or so that her allergies had cleared up and that other people with health issues and low energy levels were noticing tremendious results by drinking it. Okay so I was looking for other options other than taking meds so my daughter & I started drinking this juice and I got to thinking if everybody says so many good things about it maybe I should ween my daughter off her meds and see what happens with her from drinking this ..I knew we had about a month till the next Dr appointment. So when we got to the Dr's I told them about what we were doing and of coarse they told me thats crazy and that I'm a bad dad but since the meds are out of her system that we would monitor Emily and take blood tests each month and see what happens. We took a blood test that visit and was told to get tests each month and was told to come back in 3 months to see how she was doing..

3 months went by and we had been drinking our 4oz's a day of this juice and getting her blood tests every month. So when we got to the Dr's they looked her over and thought she looked good but they told us that according to her last blood test that we got when we were there that she needed to get back on her meds well to say the least my daughter was mad cause she did'nt like taking the meds nor did I like reminding her to take them every day nor did I like her taking them.. So I asked the Dr did they look at the other blood tests that we had taken in the other 3 months & they said no so I said well go look cause I'm not leaving till I know & they said o yeh were gonna do that ..so they did and when they came back in the room it was good news there was no signs of inflammation or any signs of JDM in her blood tests...I sighed with relief knowing that we were done with the nasty meds...

Now the thing about this Monavie juice product is that its full of wild berrys and these berrys are very anti-inflammatory and so they remove the inflammation out of your body.. So in other words no inflammation in your body means less pain or discomfort.. Now It worked for us and I can't promise it would work the same for others but its sure well worth giving it a try for taking something natural then taking something thats a chemical that rots your body and causes other things like kidney failure and other terrible problems or side effects in your body.. I guess they say if you give your body what it needs ..your body will heal itself.. Most that drink this notice less aches and pain, more energy, better moods and better sleep with out so many meds.

So the update for the last 2 years is NO signs of JDMS and with NO MEDS just drinking our Monavie juice blend everyday...As a parent I could'nt be happier for taking a chance and having success and living a happier healthier life with my daughter.. So that was our story and hope we can help with any other family that needs a glimmer of hope that theres other ways to deal with this rare disease (or any others like it) with out taking lots of meds for years and being able to live without pain & discomfort....... and a saying I like to say is "Pay It Forward" so I hope I can help you & your family and maybe you'll do the same for others & their Familys ...Like I said " Pay It Forward "!!

I want to make this clear that what I'm writing about is nothing more then a before and after account of my daughter's health and all that was said is so true in the exact way that it happened.

If you decide you would like to try monavie with your child or for yourself please go here for more info >>> monavie.com ID#3444801
I don't care where, how or who you get monavie from JUST GET IT CAUSE IT WORKS !!! Its powerful stuff..... Here's a site to look at that has testimonies about this monavie juice blend and what its done for others with diseases, also if you turn the pages on this site you'll learn more about the Acai (ah-sigh-ee) berry and what Dr's are saying & lots of other info too.....http://www.realhealthanswers.com/features/acai-berry-testimonies.htm

Have a great day and I hope for the best for any family that has to deal with this terrible disease or any other like it.... Matt & Emily

UPDATE: We just recently (6/4/10) went to the Dr's in SF and the Dr's found nothing again and the blood tests show no signs of JM in my daughters body.(no inflammation) and Dr'say we don't have to come back so we do not have to do the 7HR round trip drive to SF again yea!!!

Here it is 8/1/11 & Still no sign's of JDM, and Emily lives her life as a normal teenager (Brat lol) she can even lay out in the sun & tan with no troubles..

This company (monavie) also recently just came out with a new product called Reveal or RVL for short (RVL is a weight management / meal replacement product) and the people that apply them selves to the RVL system are losing weight fast (30 to 70lbs & more in 10 to 12 weeks) from just drinking shakes & eating nutritional snack bars and it doesn't cost anymore then what you already spend each day to eat breakfast & lunch & any other junk thats bought during the day. But heres a cool thing about RVL is each shake you drink is equivalent to 10 servings of fruit on an antioxidant level so if your having troubles getting nutrition into your child have em drink a shake or 2 each day & a powerful nutrition bar for a snack.. Thats what I do for my daughter other then the shot of juice... check out monaviervl.com to learn more about Reveal / RVL.

2 comments:

  1. Matt, your story is inspiring and the juice will hopefully help many families who are looking for answers for loved ones who are suffering with Juvenile Dermatomyositis JDM.

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  2. What doctors do you treat with? I would like to talk with them about your story. Every doctor we have ever spoken with says not to boost the immune system with this disease. It is already super boosted and over works with this disease.

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